The New Chapter: Whole or Hole? That is the Question!

Six days ago, last Tuesday, I had the appointment to remove the remaining stitches from my head. Unfortunatly, the seam didn't completely hold... I had about 2 mm split open as soon as the stitches were pulled. In the picture below, you can see the scab representing that opening. The 'dimples' also visible in the picture are from the fact that my skin that is covering the insert filling the hole in my skull is extremely thin.

Today, I went back to visit the plastic surgeon, Dr. Alperovich, to see where I can go next. Basically, I was given two options... (I was given these options at the previous visit, but more detail was provided at this appointment):

1) I could go back to having the hole in my skull - thus, requiring a helmet.

OR

2) Have a relatively major step to 'fix' my skull by taking muscle from a different area of my body (likely, from my back - the latissimus dorsi, specifically), replacing the 'plastic' part of my skull with a new one to avoid further infection, and covering my head with the scavanged muscle from my back - sans skin.

This is rather upsetting to only have those 2 choices - neither choice being all that wonderful.

At this point, I'm pretty sure that I'm going with the hole in my head option over the muscle-head option! (After making that statement, I'm even more convinced that that is the way to go...)

I think that the major downside to this part of my journey has resulted in a weight gain that I'm not thrilled with and the relative lack of exercise due to the limitations placed on me by the stitches. I basically wanted to positively effect the recovery of the implant/stitches by strictly following the instructions that I was given. It didn't work...

I was in the best shape of my life - with some difficulties that I had to deal with - when I had the hole in my skull. I had already taken on the keto diet to starve the tumor in my brain and was continuing with that aspect. I was at 15-ish% body fat and at the right-ish weight for my 6'2" height due to the exercise that I was doing. My overall mobility was cosiderably more limited than it was even one year prior, but I dealt with it through other means. (As I finish with this post, I've come to a conclusion...)

My plan is to go forward with keto, exercise, and a hole in my head!

Good Times, Bad Times...

Thank you, Led Zeppelin  - "Good Times, Bad Times, you know I've had my share..."

That's been my share for the last couple of months - good and bad times. As I mentioned in the last post, here, I didn't start with the chemotherapy due to the spiked creatinine levels and potential kidney issues. Well... shortly after that, I ended up back in the hospital for a third surgery! The stitched seam from the second surgery had *popped* open and exposed my brain to the air. As a result of the surgery, I ended up back on vancomycin. This time, they only scheduled 1,250 mg twice a day instead of 1,500 mg three times a day. I didn't have the same negative reaction - Red Man Syndrome - this time!
Due to the possible source of the creatinine spike - muscle soreness - I didn't do ANY exercise during the recovery time... 6+ WEEKS of NO exercise! As usual with vancomycin, my appetite disappeared. This time, I tried to eat every day, but my intake was still only about 1,000-1,500 calories each day. On June 1st, I weighed in at 210 lbs., 24% body fat - fairly normal for me. As of today - Nov. 13th - I weighed in at 160 lbs. and 13.6% body fat! At one point, I was down to 156 lbs. - at 6'2" tall, that's not a terribly healthy weight!

...good times, bad times.

...excuse me for a minute - I need to answer the phone...

Well, while I'm sitting here and typing this post, I got that phone call... Apparently, I should expect a delivery for one of the three components for the PCV chemotherapy - specifically, the "C" - tomorrow morning. I haven't gotten any information regarding the second component - the "P" - as to when I should be receiving that but it will come from a different pharmacy than the "C." As far as the "V" is expected, that is actually an IV that I will have to spend at least an hour at the hospital for.
Once I start the cycle, I will take "C" on day 1. Then, nothing until day 8. On day 8, I start the day with the "P" on an empty stomach and, later, head to the hospital to get the IV of "V" that will take about an hour. I, then, stay on "P" everyday from day 8 through day 21. The last part of the cycle is a second IV of "V" on day 29 BUT, I then need a blood test every week until I restart the cycle. Oh, and an MRI.

...good times, bad times.

More on the "good times" side than the "bad times"...
Given that the doxycycline *apparently* didn't have much impact on the creatinine, I'm back to exercising!