Good Times, Bad Times...

Thank you, Led Zeppelin  - "Good Times, Bad Times, you know I've had my share..."

That's been my share for the last couple of months - good and bad times. As I mentioned in the last post, here, I didn't start with the chemotherapy due to the spiked creatinine levels and potential kidney issues. Well... shortly after that, I ended up back in the hospital for a third surgery! The stitched seam from the second surgery had *popped* open and exposed my brain to the air. As a result of the surgery, I ended up back on vancomycin. This time, they only scheduled 1,250 mg twice a day instead of 1,500 mg three times a day. I didn't have the same negative reaction - Red Man Syndrome - this time!
Due to the possible source of the creatinine spike - muscle soreness - I didn't do ANY exercise during the recovery time... 6+ WEEKS of NO exercise! As usual with vancomycin, my appetite disappeared. This time, I tried to eat every day, but my intake was still only about 1,000-1,500 calories each day. On June 1st, I weighed in at 210 lbs., 24% body fat - fairly normal for me. As of today - Nov. 13th - I weighed in at 160 lbs. and 13.6% body fat! At one point, I was down to 156 lbs. - at 6'2" tall, that's not a terribly healthy weight!

...good times, bad times.

...excuse me for a minute - I need to answer the phone...

Well, while I'm sitting here and typing this post, I got that phone call... Apparently, I should expect a delivery for one of the three components for the PCV chemotherapy - specifically, the "C" - tomorrow morning. I haven't gotten any information regarding the second component - the "P" - as to when I should be receiving that but it will come from a different pharmacy than the "C." As far as the "V" is expected, that is actually an IV that I will have to spend at least an hour at the hospital for.
Once I start the cycle, I will take "C" on day 1. Then, nothing until day 8. On day 8, I start the day with the "P" on an empty stomach and, later, head to the hospital to get the IV of "V" that will take about an hour. I, then, stay on "P" everyday from day 8 through day 21. The last part of the cycle is a second IV of "V" on day 29 BUT, I then need a blood test every week until I restart the cycle. Oh, and an MRI.

...good times, bad times.

More on the "good times" side than the "bad times"...
Given that the doxycycline *apparently* didn't have much impact on the creatinine, I'm back to exercising!

What Is This All About?

Wow - a LOT ha occurred since my last trip on my journey... On January 29, 2018, I experienced brain surgery on what turned out to be a TUMOR IN MY BRAIN!

While the long-time-ago-diagnosis of Multiple Sclerosis has not been ruled out, what was diagnosed as a MS lesion in my brain was changed to a LOW GRADE GLIOMA tumor! It's kind of amazing what a relatively-new-to-me neurologist will discover after 10 years - and rather upsetting that three other neurologists will just stay with the original diagnosis AND try to prescribe a different MS drug. Although I am still trying to find a local primary care physician, all of my other doctors are located at the Yale-New Haven Hospital - not too far from home, but not too local, either.

So, why am I actually writing this - or, as the title says, what is this all about? Mainly, my focus that I want to share is what I have been trying to do that would only help the matters of my health.

A not-so-long time ago in a galaxy - well, this one... I have found something that is supposedly beneficially to healing cancer. Pau d'arco tea is that thing! Check out this link for the information that is already spelled out - no need for me to copy it here. I've started using the tea daily - 2-3 servings each day. It's how I start my day every day. Recently - well, today before writing this post - I made a 64 oz. bottle of tea to refrigerate. This was actuality a mix of 3 different teas... I used the pau d'arco, added Bigelow's Lemon Ginger tea that gives me the benefit of probiotics, and some green tea that is just all-around beneficial in so many ways.

Another step on my journey is to stick to a low/no carb diet. Sugar is a cancer fertilizer! There are so many recommendations out there that say low/no carb is the way to go. This isn't new to me, but certainly a diet that I haven't done in a while. I had great success with it in the past and actually like where it can take me again - in addition to what it can/might do for me in the tumor situation. Both the positive and negative of the low/no carb diet is the tie to the Atkin's diet. Almost all Atikn's products are poisoned by sucralose - something that I WILL NOT CONSUME IN ANY WAY, SHAPE, OR FORM. It's not like I can't eat what I want to, though. There are plenty of better options than Atkin's products.

What's coming up for me is my journey through chemotherapy. In this case, I'm looking forward (sarcasm, intended) to the course of PCV chemotherapy. From what I've read, it could be a lot worse. This particular series involves 29 days of my life with a 'time-off' of 6-8 weeks between each session. During 2 weeks of that 29 days, my diet will be restricted due to the drug that is used during that time. I won't be able to eat most cheeses, anything fermented, and a number of other things that contain tyramine.
On the positive side is the fact that the doctors do not recommend any radiation treatment!

So, that's where my journey is currently. We'll see how things progress...